Talking about STDs with Health Professionals: Women’s Experiences – Report
Talking About STDs with Health Professionals
More than 12 million new cases of sexually transmitted diseases (STDs) other than HIV/AIDS, including three million among teenagers alone, occur every year. At current rates, at least one person in four will contract an STD at some point in his or her life. With as many as 56 million individuals – more than one in five Americans – estimated to be currently infected with an incurable viral STD such as herpes or genital warts, STDs remain a serious health threat in this country. In fact, STD rates in the United States are the highest in the industrialized world, and are higher than in some developing countries.
More than 1 in 5 Americans is estimated to be currently infected with an incurable viral STD.
Source: Centers for Disease Control and Prevention, 1993
While public education efforts by the Centers for Disease Control and Prevention (CDC) and the American Social Health Association (ASHA) along with the release of studies such as the one issued November 1996 from the Institute of Medicine (IOM), The Hidden Epidemic: Confronting Sexually Transmitted Diseases, have helped to focus greater national attention on the STD epidemic, the general public remains largely unaware of the prevalence and risk of STDs. In a Kaiser Family Foundation survey conducted at the time of the release of the IOM report, less than a quarter of Americans over the age of 18 when asked what STDs they were aware of, named chlamydia – the most common STD and, according to the CDC, the most prevalent reportable infectious disease of any kind. Just 2 percent could name trichomoniasis or 'trich,' the STD with the second highest incidence in the U.S., at 3 million estimated cases annually. One in ten respondents could not name any STDs. Perhaps even more disconcerting was how limited most Americans' knowledge is about the link between STDs and HIV, with more than half (56%) of respondents unaware that STD infections increase susceptibility to the HIV virus.
Another survey by the Foundation conducted with Glamour magazine earlier this year also found that many women may be mistakenly assuming they are being screened for STDs during routine gynecological exams. Two out of five women 18-44 years old (42%) said they believed they are automatically tested, that is without requesting it, for at least some STDs other than HIV as part of their regular gynecological exams. A pap smear – the primary purpose of which is to screen for cervical cancer – can also detect genital warts, in some cases. However, the test does not detect other more common STDs such as chlamydia, gonorrhea, and trich. Specific STD screening and testing is generally at the discretion of the doctor or at the request of the patient. Although the American College of Obstetricians and Gynecologists (ACOG) recommends testing for STDs other than HIV for women at 'risk' for STDs (defined in general as women who have a history of STDs or of multiple sex partners), routine screenings are not necessarily always – or ever – included as part of a woman's routine exam.
Building on this previous study as well as on anecdotal evidence that many women may not always be getting the care they assume they are getting or even assessing their own risk appropriately when it comes to STDs, Kaiser Family Foundation and Glamour partnered again for a second survey to learn more about how women and their health providers approach the issue of STDs during gynecological or obstetrical visits. In particular, we were curious to learn about how often and with which patients doctors and other health professionals are discussing STDs, whether health providers are counseling women on the risk factors for STDs, and how women feel about their experiences talking about – or not talking about – STDs with their health provider.
The topics asked about are based on ASHA's Personal Health History form and ACOG's Guidelines for Women's Health Care. To attempt to answer these questions, staff at the Foundation in coordination with Glamour magazine staff devised a survey that queried 482 women between the ages of 18-44 who had been to a new doctor within the last year for gynecological or obstetrical care. Criteria used to select the sample were based on an assumption that the first gynecological or obstetrical visit with a new patient was the one most likely for doctors or other health professionals to discuss STDs.
The survey found that not only do STDs rarely get discussed during gynecological or obstetrical visits, but many women may not be adequately screened by their health providers for their risk of STDs. The survey also indicated that women generally expected STDs to be discussed with them by their provider as part of routine reproductive care, and that many are very receptive to automatic testing even at additional costs. A summary of the key findings follows. The survey is also reported on in the October 1997 issue of Glamour.
What the Experts Say…According to the American Social Health Association (ASHA), information on sexual history is integral to assessing a patient's risk for STD infection. In fact, questions about sexual history are part of an STD risk assessment form developed by ASHA for use by doctors. A woman's number of sexual partners is important information her health professional should know, according to Contraceptive Technology (1994) and the American College of Obstetricians and Gynecologists (ACOG) Guidelines for Women's Health Care (1996). Contraceptive Technology recommends asking every patient how many sexual partners he/she has had in the last year. ACOG's guidelines also recommend a clinician ask every patient about his/her sexual history and practices, which includes their number of sexual partners. ACOG states that a patient's number of sexual partners may not only indicate STD risk, but also help determine the best method of contraception for her.Findings:
Many women may not be screened adequately for STDs by their health providers.
Only 15 percent of women of reproductive age say they had a conversation with a health professional about STDs at their first visit for gynecological or obstetrical care. Many of the women who did not have a conversation about STDs reported not providing their health professional with the information he or she would have needed to adequately assess the patient's risk for STDs, such as:
In fact, one in five of these women (20%) said they did not think their health provider had enough information to make an adequate assessment of their risk. Of those women who did not have a conversation about STDs with a health professional but thought that he or she should have discussed the subject with them, almost one in three (30%) said they did not think their health provider had enough information to accurately assess their risk.
There is also evidence that many women may not be informed about STD risk factors. Significant percentages of women who felt their health provider had enough information to know whether they were at risk for STDs reported that they did not provide basic information about their current and past sexual activity that may have affected that assessment. Because American men and women have such limited knowledge about STDs, many of these women may not know what information specifically their health provider should have gathered from them to assess their STD risk. Given the national estimates for STDs in this country, it is likely that some of these women are under-estimating their risks or may not even be aware of whether they have an STD.
Although most women – 92 percent – filled out a form with questions about their medical history when they saw their new health provider for the first time, only half – 54 percent – said that form included questions about sexual history or current sexual activity even though the purpose of their visit was for gynecological or obstetrical care.
Health providers rarely discuss STDs as part of gynecological or obstetrical visits.
As compared to other reproductive and sexual health topics, such as birth control or breast exams, health professionals initiated conversations about STDs far less often. Only about one in ten (12%) health professionals raised the subject of STDs with a new patient. Eight in ten (83%) believe it is a topic that should be a part of routine counseling when seeing a new doctor for gynecological care.
About a third (32%) of health providers who talked about STDs with a patient recommended testing. Women were most likely to report the provider recommended tests for gonorrhea, HIV/AIDS, chlamydia, and syphilis. Those who did have conversations generally reported being made to feel 'very comfortable' about the discussion (76%). Few felt 'judged' in any way (94% said no; 6% yes).
Women expect their health providers to raise the subject of STDs.
Most women (64%) say it is up to the health professional to raise the topic of STDs during a gynecological visit. A quarter (23%) say it is primarily the patient's responsibility to initiate this conversation, and 12 percent say the responsibility is shared. In fact, a third (33%) of the women who did not discuss STDs during their visit thought their health provider should have raised the subject with them.
Eighty-six percent of women who did discuss STDs during their first visit with a new doctor said they felt it was 'expected' that the topic would come up. About half (47%) said they were 'relieved' once it was discussed.
The Real Facts: The Most Common STDs
(in US pop.)
Long-term Health EffectsChlamydia4,000,000YesGenital discharge, burning during urination. Women: lower abdominal pain, pain during intercourse. Men: swelling or pain in testicles.If left untreated, may lead to PIDTrichomoniasis
“Trich”3,000,000YesVaginal discharge, vaginal odor, discomfort during intercourse, and painful urination.Inflammation of fallopian tubes, low birth weight and premature infants.Pelvic
(PID)1,000,000YesDull pain or tenderness in the lower abdomen, abnormal periods, abnormal vaginal discharge, nausea and/or vomiting, fever and chills.Damages the fallopian tubes, making it difficult or impossible for a woman to have children. Increased risk for ectopic pregnancy, chronic abdominal pain, pelvic adhesions (tissue grows which connects internal organs together), pelvic abscesses.HPV
warts500,000 – 1,000,000NoWarts on the vulva, vagina, anus, cervix, penis or scrotum, which may lead to itching, pain or bleeding.Increased risk of cervical cancer.Gonorrhea80,000YesDischarge from penis, vagina or rectum, and burning or itching during urination. Sore throat.If left untreated, may lead to PID.Genital
herpes200,000 – 500,000NoItching or burning in genital area; pain in the legs, buttock, or genital area, or vaginal discharge. Flu-like symptoms.Nerve pain, inflammation of spinal cord, urethral strictures, and miscarriage, stillbirth, or non surviving premature infant.Syphilis101,000YesPainless sore (chancre) on genitals or in vagina, skin rash and flu-like symptoms, mild fever, fatigue, sore throat, hair loss and swollen glands throughout body.In late, or tertiary stage, mental illness, blindness, heart disease and death.HIV/AIDS80,000NoFlu-like symptoms, such as fever, loss of appetite and weight, fatigue, enlarged lymph modes.Partial paralysis/weakness of muscles, symptoms affecting the spinal cord, lowered resistance to opportunistic infections, increased risk of cervical cancer, and death.